Tuesday, February 17, 2015

February We Are RARE Schizencephaly Super Hero of the Month

http://wearerare.org/2015/02/17/ethan-februarys-schizencephaly-super-hero-month/


   

Ethan! February’s Schizencephaly super hero of the month


Parents Terrie and Larry Randolph write
Ethan Wayne Randolph born in Dayton, Ohio on Nov 3, 2008 with Schizencephaly. We initially were told of his condition during an ultrasound at 7.5 mos gestation. At that time we were told the best thing we could do not only for Ethan and ourselves but also for society would be to go out of state and have a late term abortion. The Dr stated it would be for the best as he would most likely be nothing more than a burden and would never have a quality of life as he would most likely not ever speak, play, walk or anything “normal” babies and children do. To this day I can still vividly hear those words being spoke to our family. We knew Ethan was a special gift that was being given to us and we were going to keep and love him for as long as we could even if it was to be for a short time. Less than 12 hrs old he was sedated for the first time and transported to children s hospital for an MRI to confirm the diagnosis.
  The Dr couldn't have been more wrong with what he would do and could do! We couldn’t be more proud of our little guy and all the progress and obstacles he has faced and overcome. He started therapy at 4 weeks old having PT and OT. He has since had aqua therapy and speak therapy as well. I wholeheartedly believe that he is doing as well as he is today because of his willpower to fight through the struggles and all of his amazing therapists who have worked with him over the years. To us he is a “normal” 6 yr old little boy who has a different kind of life. He has been through a lot but continues to fight the battles life throws his way. He started walking when he was 3 and just recently underwent a club foot with tendon release and transfer surgery on his right foot and leg which has had an amazing impact on his walking ability

 Along with his Schizencephaly he also has several other diagnosis such as Cerebral Palsy, Polymicrogiria, Scoliosis, Sensory Processing Disorder to name a few. These will never hold Ethan back in life because he will not allow them to. Today he is such a happy little boy who just wants to show everybody how much they are loved, just as we have always shown him. He enjoys doing things other kids do, he just has to work an little harder. He loves to run and play and get into mischief as any child does. I have always said he is my littlest hero from day one. He may only be 6 but he is such a wonderful and special little boy who has probably taught me more than I have him.
Congratulations Ethan! You are a true super hero