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Showing posts from September, 2014

A place in the sun 7 stages of accepting the unexpected in special needs.

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I felt it was therapy to write this book and share with other how I have dealt with my mourning through the last 14 years in being a special needs mom
 I hope others can understand that special needs diagnosis's can be like mourning a death but our stories remain open.
 Please get a copy and share with others dealing with depression and guilt associated with any uniquely gifted child.


https://www.createspace.com/4979806

Schizencephaly Super hero of the month

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We are RARE is excited about our new Super hero highlight on our website.
 We welcome families to sign up their children and allow us to share stories and pictures for a month as our special family .
 Your family member will also get a custom made super hero mask as they are joining an elite force of warriors
Please sign up here.\
http://www.wearerare.org/rare-super-hero/

Sunset in the keys with noah

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What a wonderful vacation swimming with the dolphins with Noah's schiz buddy Andrew

Weight gain on a blended diet

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Noah is doing amazingly well on whole foods with no more formula.
No more reflux and he's gone from 44 to 72 pounds