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Showing posts from September, 2013

Our Ride for R.A.R.E. video

Schizencephaly Awareness necklaces and Keychains

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Shea Page says " After my daughter Stellan was diagnosed with Schizencephaly, I wanted to help spread the word about the rare brain disorder. I began designing and making these heart shaped MRI image to help raise awareness. All proceeds will go directly to helping my daughter to get all the help and therapy she needs. Thank you for the support!"

Selling customized Schizencephaly Awareness necklaces and key chains for $15!
Send me a message with the MRI image you want me to use to custom make your order! All necklaces come in either black, green or purple ribbon, or a combination of! Looking forward to having you all wear these to help raise and spread awareness of such a rare disorder!

https://www.facebook.com/GreyMattersSchizencephalyAwareness

defiant Noah

Noah meets Faith

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We got to meet another Schizencephaly family last week at Disney downtown.
 These two kids were full of giggles and super shy

4A.m fun

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Noah is now saying I love you. This has been such an emotional week

Words cannot describe this . I am just one proud mama