Monday, December 3, 2012
Sadie's story. Schizencephaly A journey of a brave sadie Bug
The last few years I have met some of the most amazing people through Noah. Some people have become permanantly fixed in my heart. Some parents I feel so close to and love their children just like they are my own. Miss Sadie is one of those children.
Thanks so much for letting me share your journey Mistie. Every story helps us all feel that much more sane. So many of us all so different and then after reading another moms story we somehow feel like we are right there with you.
I feel very close to this story as it is much like Mine. Stay tuned all week for the rest of Sadie Bugs story
Sadie's Story Written by mom Mistie
I was 16 a senior in High School when I found out I was pregnant with Sadie. I really didnt know I was pregnant till I was about 3 months along. Just like every teen that finds out they are pregnant, I was scared to tell my parents. So I hide it for another 3 months.
My first appt. with the doctor to find what I was having and if the baby was healthy, made a dramatic turn. The doctor told me he thought Sadie might have a cist on her brain, but he wanted me to go to UTMB in Galveston to get a second opinion. So thats what we did. We went up there thinking every thing is going to be ok. Gilbert(daddy) and I talked about what the doctors told us already, that if it was a cist it was removeable, or that it actually just may be nothing. They never showed us the ultrasound that they did. So we didnt know exactly what they saw. The day of the appt. at UTMB everything was going great, we had our worries but we didnt let that get the best of us till we knew for sure. Finally the nurse comes in to do the ultrasound and she is upbeat about it and showing us our little girls fingers and toes. Then as the nurse goes on and is showing us our little girls face and taking measurements, she gets quiet. I look over to see the nurse has tears coming down her face. All I could do is just look at her and wonder what is going on, what does she see in that picture that we dont. Then all of a sudden she excuses herself and tells us she will be right back with the doctor. While the nurse is gone I remember talking to my family and letting them know that we have decided on a name for our baby, Sadie Nicole Perez. A few minutes later the the doctor comes in to look at the ultrasound. He thens starts showing us this black area on the screen where Sadie's brain is. He tells us it looks like there is alot of fluid on her brain but he would like to do a MRI to get a better look at her. Of course I start freaking out about the fluid on Sadie's brain and the effects it could have on her. Then i start in on the fact I had never heard of them doing MRIs on pregnant women. The doctor lets us know its safe to do and we have nothing to worry about. He should of thought those words threw alittle bit better, I had alot to worry about. The appt. was set up for that day and I remember it taking forever because Sadie was doing alot of kicking that day. They kept telling me not to move, I had to tell them it wasnt me it was her, that they needed to tell her that. They finally got what they needed and they let me come in the room to see how it looked with Sadie in my tummy. I have to say that part was neat, of course they didnt show me anything else they had.
Hours later the doctor finally comes and sees us to tell us the results of what was found. He started off by asking me if I had been in any type of accident since I got pregnant, and i tell him no. Thats when he tells us, your daughter has a rare brain disorder called Schizencephaly.....Life as We knew it Changed forever.