Thursday, April 17, 2014

Swimming with the dolphins

In 32 days Noah will return to island dolphin care to meet his friends for the fourth time.
He is so very excited. Each time we go I see all sorts of improvements and I know with him being so vocal lately he will be pushed even harder.
This boy is my hero. Every day he teaches me how special life is. How we should never take anything for granted and mostly how amazing the mind is.

Sunday, April 13, 2014

Noah working on talking His amazing year of hard work.

I cannot even express the feeling that I have knowing Noah is trying so hard to speak to us. He is saying "I love you", "More" and Yay as well as hi often now. Makes my heart dance. Noah says " Yay"!
noah says "I love you"
working on his Ipad
blowing Kisses
saying "more"
signing "N" for Noah



Saturday, April 5, 2014

Baseball happiness

Nothing makes mama more proud than seeing my little boy defy the odds and reach for the stars
Never would I imagine the joy he would get from playing baseball. He makes my heart melt.

Saturday, March 15, 2014

Monday, March 3, 2014

A special thank you to JCI Live Austin, for their help in awareness

 Ever so often someone hears the words Schizencephaly and instead of passing by in a few exchanged words, they take the time to listen and hear our story.
 Terrie and Ethan made that happen by sharing their story with Craig and Mauri Gandy.
 They have been an amazing support for this disorder and have assisted in getting a huge amount of awareness out for everyone.
  The struggles in this life and the challenges we face as parents are immense. Often times we forget to give ourselves the appreciation we deserves as parents.
 We forget to make time to remember we have to breathe and walk out of a room at times to gather our thoughts. Often we are hard on ourselves and spend most of our nights worrying.
 From wondering who will take our places should something happen to us, to staying awake nights on end when our loved one is sick it is a life we often spend in constant stress.
 I want to thank all the families that have believed in me many years ago when so many were against us. For us this fight has always been about answers and education. I am honored to say today I feel strongly those visions are close at hand and it is because of the amazing families that fought right along asking for a voice. For you families it has been worth every minute of this journey.
 I always try to see some light even in the midst of the darkness. Many times it is the families fighting the same battles that I find that light in.
 For that I am eternally grateful

Sunday, February 16, 2014

I love someone with Schizencephaly shirts ready for ordering

Please specify size and if you would like your child's ( loved ones name above the heart) we ask for 3.00 extra for names.
Unilateral

Bilateral

sizes unisex
type
Name of child